Anything but Sorry- Leo's Story

Jun 30 / Nikita Oosthuizen
Receiving a Down syndrome diagnosis can feel overwhelming — and you're not alone in that. In this blog post, we share a heartfelt video from the Canadian Down Syndrome Society that follows real parents as they reflect on those early days after diagnosis. Their stories are honest, emotional, and full of hope. We’ve also included a simple blog post that gently explains what Down syndrome really means — to help you take the next step with clarity and confidence. Whether you’re looking for reassurance, information, or community, you’ll find it here.
You’re Not Alone 

In the hours and days after receiving a Down syndrome diagnosis, many parents describe feeling overwhelmed, confused, or even numb. If you're feeling any of that please know, you're not alone.

In this short and moving video, you’ll meet parents who’ve stood exactly where you are. They talk about the initial shock, the fear of the unknown, and most importantly how, with time, things began to feel okay. Even joyful.

Write your awesome label here.

🎥 Watch: Anything But Sorry — Leo's Story -By the Canadian Down Syndrome Society (CDSS) 
Source: Canadian Down Syndrome Society 

These stories aren’t sugar-coated. They’re honest, tender, and full of the kind of hope that only comes from lived experience. 

No two families are the same but so many have walked this path before you. And they’re ready to walk it with you. 

 Join the Small Steps Community Connect with other parents. Share your story. Find your people. 

If you’re looking for a simple, clear explanation of what Down syndrome actually is (without the medical jargon), we also have a flyer explaining everything you need to know: 
Disclaimer: The information provided on Small Steps Online is for educational purposes only and is not a substitute for professional medical, therapeutic, or developmental advice. Always consult with qualified healthcare providers, therapists, or relevant professionals regarding your child’s specific needs and situation. The September Institute and Small Steps Online are not liable for any outcomes resulting from the use or misuse of the information shared here.
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